Beyond the Numbers

Blog Category: action, HIV Health — Blogged by: Emerson on March 22, 2007 at 8:11 am

We offer many support groups at AIDS Action Committee. From the members of these groups we have gathered that their health concerns are moving beyond those of just T cell counts and viral loads. This is not to say that HIV is not foremost in my mind when I am speaking with a client. This disease is still killing people every day and it will continue to do so until we stop this epidemic

However, many of our clients have been successfully managing their HIV and are now incurring other medical issues. Unfortunately it seems that HIV docs are not responding in an appropriate manner. Many clients at AIDS Action have expressed frustration. Many feel like numbers rather than patients. I realize how difficult it was for docs in the first 15 years of this epidemic. However with increasingly safer, efficacious drugs now available it is time for doctors to stop treating HIV solely and to start treating patients as human beings again. I think it is time for HIV docs to be HIV docs and let Primary Care docs take care of the rest.

I owe my life to HIV docs. Throughout the years, through their dedication I have survived. Now I am living and aging. I am no longer consumed with HIV and all its baggage. Until this is over my primary purpose will always be to end this epidemic. For now I want to live as normal as possible. Routinely I will see my HIV doc four times a year. The rest of the time I will live.

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1 Comment »

Comment by Joe Wright

April 18, 2007 @ 10:42 am

Emerson…

How do you and other folks you talk to feel about doctors who try to be both things?–that is, people who have HIV expertise but are primary care doctors. I’m thinking of some primary care-oriented docs who have a lot of HIV experience and knowledge, have a lot of patients who are people living with HIV, but also have some patients who aren’t; and for both sets of people, they are acting as primary care doctors. Then maybe they refer you to HIV super-specialists for really tough medical problems like trying to deal with complicated or unusual resistance mutations when choosing the next drug regimen… but mostly they think of HIV care as one part of primary care.

Or do you feel like it’s better to separate the two–go see the specialist for your HIV care, and your general primary care doctor for everything else?

joe

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